Document Type


Publication Date


Publication Title

Journal of Pediatric Rehabilitation Medicine







Publisher Name

IOS Press


Research supports a resilience-disruption model of family functioning in families with a child with spina bifida. Guidelines are warranted to both minimize disruption to the family system and maximize family resilience and adaptation to multiple spina bifida-related and normative stressors. This article discusses the spina bifida family functioning guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of People with Spina Bifida, and reviews evidence-based directions with the intention of helping individuals with spina bifida achieve optimal mental health throughout their lifespan. Guidelines address clinical questions pertaining to the impact of having a child with spina bifida on family functioning, resilience and vulnerability factors, parenting behaviors that may facilitate adaptive child outcomes, and appropriate interventions or approaches to promote family functioning. Gaps in the research and future directions are discussed.


Author Posting © IOS Press and the Authors, 2020. This article is posted here by permission of IOS Press and the Authors for personal use, not for redistribution. The article was published in Journal of Pediatric Rehabilitation Medicine, Volume 13, Issue 4, December 2020,

Creative Commons License

Creative Commons Attribution 4.0 International License
This work is licensed under a Creative Commons Attribution 4.0 International License.

Included in

Psychology Commons